NCT00891891

Psychosocial Adjustment of Adolescents with Spina Bifida

Study Contact:

Study Phase:

Recruitment Status:

ACTIVE_NOT_RECRUITING

NCT ID:

NCT00891891

Principal Investigator:

Study Type:

OBSERVATIONAL

Official Title:

Psychosocial Adjustment of Adolescents with Spina Bifida

Summary

The purpose of this longitudinal study is to evaluate a developmentally-oriented bio-neuropsychological model of adjustment in youth and young adults with spina bifida. The theoretical framework for the study is a developmentally-oriented bio-neuropsychosocial model of psychological adjustment.

Eligibility

Inclusion criteria for youth with SB were:

1. a diagnosis of SB (types included myelomeningocele, lipomeningocele, myelocystocele),
2. age 8-15 years at Time 1,
3. ability to speak and read English or Spanish,
4. involvement of at least one primary custodial caregiver,
5. residence within 300 miles of the laboratory (to allow for home visits to collect data).

Latino families were intentionally oversampled to better study this subpopulation of youth with SB, given their prevalence.

Disease(s) and\or Condition(s)

Spina Bifida

Primary Purpose

Intervention/Treatment

Sponsor

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)